A Night With Joshua Bell
5 years ago
Friday, June 19, 2009
Drama
We're going through some tough times with Avery right now - she's pretty much been in the hospital since Saturday, and we still don't really know what's wrong. I've been texting updates to my facebook profile, so if any of you are on facebook, you can befriend me and keep up with Avery's status there. I'm also trying to update my other blog as often as possible, but that happens less frequently since I only have access to a computer when I'm at home.
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5 comments:
How does a baby get hydrocepalus is there a casue or reason for it?
There are lots of possible causes, and sometimes it remains a mystery. In Avery's case it seems to have been a small cyst which blocked the flow of CSF and caused her hydrocephalus.
Happy birthday to your beautiful daughter! My daughter also has hydrocephalus, I stumbled across your blog and just wanted to invite you to the hydro group I have on facebook if you are not already a member! There are 898 members in the group there and they are a great support! Its "parents of children with hydrocephalus!" I also blog about my family including my daughter on here as well jolenesblogrocks.blogspot.com
i found out my little boy zane had hydrocepalus the mintue he was born he ha a enlarged head which was very scary for me as it was not picked up in the scans.. he also had a samll cyst which blocked his flow of CSF.. he had an operation at the age of 5 weeks and since then *touch wood* he hs had no futher problems and he has regulate cheks at the hospital
my daughter Ashkey is also hydrocephalus. i discovered when she was 6months old. i live in Kenya (Africa)and it was really hard for me cz of the traditional believes and they thought it was a curse. she is almost 3 and she has really improved. i thank God for her i'd really like to join ur group.
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